Abstract :

The family’s ability as a caregiver for schizophrenic patients is very necessary because it can affect the success of the treatment process provided. This article aims to determine the relationship between family burden, stigma, stress, social support, family acceptance and family’s ability in caregivers of patients with schizophrenia. This study used a quantitative method with a cross-sectional study design. The study was conducted at the outpatient polyclinic at Teuku Umar General Hospital with a total sample of 98 family members of schizophrenic patients. The results of this study indicate that family burden, stress, stigma, and acceptance are related to the family’s ability to provide care to schizophrenic patients (p = 0.0001 < 0.05). Only the social support variable has no relation with the family’s ability to provide care to schizophrenic patients (p = 0.145 > 0.05). The lack of a relationship between the social support variable and family’s ability is consistent with the stigma variable’s results, which indicates a negative stigma from the community towards the family, so social support becomes unnecessary. This study concludes that families can better care for schizophrenic patients when their burden, stress level, and stigma are reduced or lower. The greater a family accepts schizophrenia patients, the greater their ability to care for them.

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Keywords :

Cargivers, Family, Patient, Relationship, Schizophrenia.

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References :

1. NIMH, “NIMH · Schizophrenia,” National Institute of Mental Health; U.S. Department of Health and Human Services. 2020. Accessed: Dec. 06, 2022. [Online]. Available: https://www.nimh.nih.gov/health/topics/schizophrenia
2. Tamminga, “Social Phobia – Psychiatric Disorders – MSD Manual Professional Edition,” 2022. https://www.msdmanuals.com/professional/psychiatric-disorders/anxiety-and-stressor-related-disorders/social-phobia (accessed Dec. 06, 2022).
3. WHO, “Schizophrenia,” 2022. https://www.who.int/news-room/fact-sheets/detail/schizophrenia (accessed Dec. 06, 2022).
4. W. Stuart, Prinsip dan Praktik Keperawatan Kesehatan Jiwa. Elsevier, 2016.
5. W. Agustina and S. Handayani, “Kemampuan Keluarga dalam Merawat Pasien Skizofrenia dengan Gejala Halusinasi,” URECOL, pp. 439–444, Sep. 2017, Accessed: Dec. 06, 2022. [Online]. Available: https://journal.unimma.ac.id/index.php/urecol/article/view/1083

6. Sulastri, “Kemampuan Keluarga dalam Merawat Orang dengan Gangguan Jiwa,” J. Kesehat., vol. 9, no. 1, p. 131, May 2018, doi: 10.26630/jk.v9i1.721.
7. Mislianti, D. E. Yanti, and N. Sari, “Kesulitan Keluarga Dalam Merawat Orang Dengan Gangguan Jiwa Di Wilayah Puskesmas Kesumadadi Kecamatan Bekri Kabupaten Lampung Tengah Tahun 2020,” J. Kesehat. Masy., vol. 9, no. 4, pp. 555–565, 2021, doi: 10.14710/jkm.v9i4.30117.
8. Fitryasari, A. Yusuf, Nursalam, R. D. Tristiana, and H. E. Nihayati, “Family members’ perspective of family Resilience’s risk factors in taking care of schizophrenia patients,” Int. J. Nurs. Sci., vol. 5, no. 3, pp. 255–261, Jul. 2018, doi: 10.1016/j.ijnss.2018.06.002.
9. Fitryasari, N. Nursalam, A. Yusuf, R. Hargono, and C.-M. Chan, “Predictors of Family Stress in Taking Care of Patients with Schizophrenia,” J. Ners, vol. 13, no. 1, pp. 72–79, Apr. 2018, doi: 10.20473/jn.v13i1.7762.
10. Fitryasari, N. Nursalam, A. Yusuf, R. Hargono, E. C. Lin, and R. D. Tristiana, “Development of a family resiliency model to care of patients with schizophrenia,” Scand. J. Caring Sci., vol. 35, no. 2, pp. 642–649, Jun. 2021, doi: 10.1111/scs.12886.
11. Lestari, Kumpulan Teori Untuk Kajian Pustaka Penelitian Kesehatan. Yogyakarta: Nuha Medika, 2015.
12. Kusumawardani, “Hubungan antara beban dan koping keluarga, kemampuan keluarga merawat pasien skizofrenia,” Universitas Airlangga, 2019.
13. Huang, L. Lam, V. Plummer, and W. M. Cross, “Feeling responsible: Family caregivers’ attitudes and experiences of shared decision-making regarding people diagnosed with schizophrenia: A qualitative study,” Patient Educ. Couns., vol. 104, no. 7, pp. 1553–1559, Jul. 2021, doi: 10.1016/j.pec.2020.10.032.
14. Bahari, I. Sunarno, and S. Mudayatiningsih, “Beban Keluarga Dalam Merawat Anggota Keluarga Dengan Gangguan Jiwa Berat,” J. Inf. Kesehat. Indones., vol. 3, no. 1, pp. 43–53, 2017, Accessed: Dec. 06, 2022. [Online]. Available: https://ojs.poltekkes-malang.ac.id/index.php/JIKI/article/view/41
15. -F. Wan and M. M. C. Wong, “Stress and burden faced by family caregivers of people with schizophrenia and early psychosis in Hong Kong,” Intern. Med. J., vol. 49, pp. 9–15, Mar. 2019, doi: 10.1111/imj.14166.
16. Henriksson, B. Andershed, E. Benzein, and K. Årestedt, “Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness,” Palliat. Med., vol. 26, no. 7, pp. 930–938, Oct. 2012, doi: 10.1177/0269216311419987.
17. C. M. Gratão et al., “Brief version of Zarit Burden Interview (ZBI) for burden assessment in older caregivers,” Dement. Neuropsychol., vol. 13, no. 1, pp. 122–129, Mar. 2019, doi: 10.1590/1980-57642018dn13-010015.
18. -C. Chang, J.-A. Su, and C.-Y. Lin, “Using the Affiliate Stigma Scale with caregivers of people with dementia: psychometric evaluation,” Alzheimers. Res. Ther., vol. 8, no. 1, p. 45, Dec. 2016, doi: 10.1186/s13195-016-0213-y.
19. I. Iacob, E. Avram, and V. Burtaverde, “Psychometric properties of the Kingston Caregiver Stress Scale in Romanian caregivers of children and adults with disabilities,” Res. Dev. Disabil., vol. 112, p. 103921, May 2021, doi: 10.1016/j.ridd.2021.103921.
20. D. Laksmita, M.-H. Chung, Y.-M. Liao, and P.-C. Chang, “Multidimensional Scale of Perceived Social Support in Indonesian adolescent disaster survivors: A psychometric evaluation,” PLoS One, vol. 15, no. 3, p. e0229958, Mar. 2020, doi: 10.1371/journal.pone.0229958.
21. D. Tristiana, B. Triantoro, H. E. Nihayati, A. Yusuf, and K. L. Abdullah, “Relationship Between Caregivers’ Burden of Schizophrenia Patient with Their Quality of Life in Indonesia,” J. Psychosoc. Rehabil. Ment. Heal., vol. 6, no. 2, pp. 141–148, Dec. 2019, doi: 10.1007/s40737-019-00144-w.
22. Annisa, “BURDEN OF FAMILY CAREGIVER,” Belitung Nurs. J., vol. 2, no. 1, pp. 10–18, Feb. 2016, doi: 10.33546/bnj.7.

23. Yin et al., “Experiences of Stigma and Discrimination among Caregivers of Persons with Schizophrenia in China: A Field Survey,” PLoS One, vol. 9, no. 9, p. e108527, Sep. 2014, doi: 10.1371/journal.pone.0108527.
24. Widyowati, B. Murti, and A. Sudiyanto, “Relationship of Ability of Family Caregivers and Society’s Stigma to Prevent Relapse and Improve the Quality of Life for People with Mental Disorders,” Open Access Maced. J. Med. Sci., vol. 9, no. E, pp. 1190–1193, Nov. 2021, doi: 10.3889/oamjms.2021.7033.
25. E. Nihayati, I. Herawati, and A. S. Wahyudi, “The Relationship between Stigma, Resilience, and Quality of Life from Family Members Taking Care of Schizophrenic Patients,” Syst. Rev. Pharm., vol. 11, no. 3, 2020.
26. -C. Ong, N. Ibrahim, and S. Wahab, “Psychological distress, perceived stigma, and coping among caregivers of patients with schizophrenia,” Psychol. Res. Behav. Manag., vol. Volume 9, pp. 211–218, Aug. 2016, doi: 10.2147/PRBM.S112129.
27. E. Udoh, D. E. Omorere, O. Sunday, O. S. Osasu, and B. A. Amoo, “Psychological distress and burden of care among family caregivers of patients with mental illness in a neuropsychiatric outpatient clinic in Nigeria,” PLoS One, vol. 16, no. 5, p. e0250309, May 2021, doi: 10.1371/journal.pone.0250309.
28. El-Monshed and M. Amr, “Association between perceived social support and recovery among patients with schizophrenia,” Int. J. Africa Nurs. Sci., vol. 13, p. 100236, 2020, doi: 10.1016/j.ijans.2020.100236.
29. Karaçar and K. Bademli, “Relationship between perceived social support and self stigma in caregivers of patients with schizophrenia,” Int. J. Soc. Psychiatry, vol. 68, no. 3, pp. 670–680, May 2022, doi: 10.1177/00207640211001886.
30. Darni, A. Yusuf, and R. D. Tristiana, “A Systematic Review of the Family Acceptance of a Schizophrenic Patient,” Int. J. Psychosoc. Rehabil., vol. 24, no. 7, 2020.